Resources

What you need, when you need it.

Every resource here has been carefully chosen. Nothing overwhelming. Nothing that requires a login to access.

We did the searching so you don't have to.

The internet is full of ALS information. Some of it is helpful. Some of it is terrifying. Some of it is outdated. We've done the work of finding the resources that are genuinely useful — and organized them so you can find what you need without having to wade through everything else.

All resources listed here are free to access. If you find a broken link or know of a resource we've missed, please let us know.

National Organizations

ALS Association

The largest ALS nonprofit in the US. Care services, research funding, support groups, and equipment loans.

Les Turner ALS Foundation

Research, care, and community support based in Chicago with national reach.

Prize4Life

Accelerating ALS research through innovation prizes and patient advocacy.

Finding ALS Care

ALS Clinic Finder

Locate a certified ALS multidisciplinary clinic near you through the ALS Association.

ALS TDI Clinic Network

ALS Therapy Development Institute's network of research-connected clinics.

VA ALS Services

Veterans with ALS are entitled to 100% disability rating and comprehensive VA care services.

Support Groups

ALS Association Support Groups

In-person and virtual support groups for people with ALS and their caregivers.

Patients Like Me — ALS

Online community where people with ALS share experiences and track symptoms.

ALS Forums

Active online forum community for people with ALS and caregivers.

Financial Assistance

ALS Association Financial Assistance

Help with equipment, home modifications, and other financial needs.

Social Security Disability (SSDI)

ALS qualifies for expedited SSDI processing under the Compassionate Allowances program.

Patient Advocate Foundation

Help navigating insurance, financial assistance, and access to care.

Caregiver Resources

Caregiver Action Network

Education, peer support, and advocacy specifically for family caregivers.

ARCH National Respite Network

Find respite care services — temporary relief for caregivers.

Family Caregiver Alliance

Comprehensive information and support for family caregivers.

Mental Health Support

988 Suicide & Crisis Lifeline

Call or text 988. Available 24/7 for anyone in emotional distress.

Psychology Today Therapist Finder

Find a therapist who specializes in chronic illness, grief, or caregiver support.

Open Path Collective

Affordable therapy sessions ($30–$80) for those without adequate insurance.

Adaptive Equipment & Technology

ALS Equipment Program

The ALS Association loans durable medical equipment at no cost.

ALS Assistive Technology

Resources for communication devices, eye-tracking technology, and more.

United Spinal Association

Advocacy and resources for people with mobility-related disabilities.

Legal & Planning

Caring Connections — Advance Directives

Free advance directive forms for every US state and guidance on end-of-life planning.

National Academy of Elder Law Attorneys

Find an elder law attorney who can help with estate planning and benefits navigation.

ALS Association Legal Resources

Guidance on legal planning specific to ALS, including disability benefits and FMLA.

Know a resource we missed?

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If you've found a resource that made a difference for you and it's not listed here, please let us know. We review every suggestion.

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"You don't have to find your way alone. These people have walked this road before you."

— Bear